Writing for the Health of It

James W. Pennebaker, Chair of the Psychology Department at the University of Texas at Austin, explored the links among traumatic experiences, expressive writing, and physical and mental health. Research results have shown decreased levels of stress, pain, and depression and strengthened immune systems. In writing about stressful events, patients may experience fewer symptoms and disability.

Laura King, Ph.D., Professor of Psychological Sciences, University of Missouri, Columbia, suggests that people who write about their most positive experiences (the positive aspects of traumatic experience, their best future selves) merit the same physical benefits as writing about negative emotional experiences. This may be a way for individuals not ready to delve into negative feelings to still benefit from writing. For further information, refer to Burton, C. M. & King, L. A. (2004) “Health benefits of writing about intensely positive experiences.” [1] 2004. Journal of Research in Personality, 38, 150-

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Health, Illness and Healing Narrative

My interest in narrative medicine began in 2005 when I wrote a paper for a creative writing class on the topic. My curiosity surfaced again in May 2009 when asked to present a one-hour talk on narrative medicine to a graduate level writing class at Denver University. In June 2009 and 2010, I attended narrative medicine workshops at Columbia University. Already familiar with the work of Dr. Rita Charon, it was a pleasure to initially meet her and have the opportunity to interact with her and her colleagues in the classroom on these informed occasions.

The field of narrative medicine is increasingly becoming a part of medical school and nursing training and health-care practice across the country. Having a patient write their story of illness and/or having a health care professional write prose or poetry about his or her own visceral response to a patient’s echocardiogram. a patient’s experience with AIDs, or what its like for the doctor to wait in the waiting room, has been shown to have powerful effectiveness in helping patients
and their doctors forge healing partnerships.

Currently, there is an abundance of published accounts of the lived experience of illness, the provider, patient, and caregiver narrative. Personal stories can be found online, in a journal or published book (fiction, nonfiction, poetry, comic). Expression of an illness experience through photography, art,theater and film is also plentiful.

Through narrative, patients (including health care professionals), caregivers and families of the sick are reflecting and giving expression, coherence and meaning to their experiences. In layers, the insides of their experiences are told rather than an analytic account of the disease process and its treatment. In the process, patients convey their own words, new perceptions of body and self may be identified and patients voices are being restored and strengthened. How one thinks about their experience, consciousness and behavior may change through the process of translation. The act of expression –writing, creating or performing–may help patients celebrate the lives they’ve lived.

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Pregnancy/Miscarriage/Blighted Ovum

At my very first obstetrical visit, my doctor told me, everything’s normal. “You will be able to hear the baby’s heartbeat on your next visit.” I was thirty-years old and eight weeks pregnant, for the first time. Four weeks later, to celebrate my husband’s college graduation and the pregnancy, we went on vacation to the Florida Keys. We doted on each other, snorkeled and relaxed on the beach—until I started bleeding—bright red blood. No cramping. No clots. When I called the doctor, he didn’t seem worried.

I didn’t panic, yet. The bleeding passed.

Then one night, at ten p.m., I started bleeding again, this time passing clots and soaking a couple of pads in an hour. My husband had already gone to bed. Severe cramping followed. I sat still and held my breath. I wanted the bleeding to be a figment of my imagination. But my nurse’s training could not overlook the symptoms.

In the ER, I was given pain medication, thankful for the relief. The exam showed that my cervix had started to dilate. I was only thirteen weeks. I knew what that meant. The doctor performed a D & C. Just like that, my baby had vanished. Back home in Colorado, I was fine physically.

I learned from the pathology report that I hadn’t been pregnant at all. There was no fetus. My body had behaved as if it were pregnant. I had never heard of this. A blighted ovum? A fertilized egg implants in the uterus and the placenta grows because of placental hormones-but there is no fetal development.

For months, I lived in a fog. My clothes started to fit again, but I wasn’t the same. I had no one to name or bury. It didn’t make sense. It wasn’t fair. I wanted to scream. (Excerpt from Coming to Term)

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Migraines/Food Sensitivities

In December 2004, I started having migraines on my 50th birthday, six months after I was officially menopausal. I was one of the lucky ones that got my migraines diagnosed early on and was cared for by a competent, knowledgeable neurologist who specialized in head pain. Despite all efforts to successfully treat and manage me on an outpatient basis, I found little or no relief, and the pain and debility worsened. I was air-ambulanced to a specialty head pain hospital in Michigan in April 2005 for in-patient treatment.

Back home, in addition to following my neurologist’s prescribed treatment and follow-up plan meticulously, these past five years have taken me on many alternative paths in my quest for healing including acupuncture, massage therapy, cranial-sacral therapy, Muscle-Activation Technique, Pilates, to name a few. Frequent migraines made life difficult because of incapacitating pain and impaired cognitive abilities. Passionate about writing, I consistently wrote in two voices, when I felt good and when I didn’t.

Summer 2009, determined to not be nauseous every day for the rest of my life, I eliminated gluten, wheat, and sugar in addition to the well known migraine triggers—chocolate, cheese, wine—from my diet. In January 2010, continuing to have symptoms, I went to a master nutrition therapist who after initial testing came back normal, recommended I get a complex stool analysis. Results revealed severe dysbiosis, the bacterial balance in my stomach was significantly off balance with resultant malabsorption and maldigestion. In other words, I had no good bacteria and lots of bad bacteria, a major problem. Professional treatment with high-dose probiotics has eliminated the nausea and my need for migraine abortive drugs. My stomach continues to heal. I’m to receive re-testing results soon.

This summer, I’ve been on a neighborhood swim team and even went to a concert at the Botanical Gardens. I’m traveling and going to restaurants. Best of all, I’m writing in one voice. I see my neurologist again in nine months, six months from now. Blessings are abundant.

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